林鸿缘,陈璟,廖晓琴,刘颖洁,林美娇,彭山玲.结直肠癌造口患者疾病感知与生活质量的纵向研究[J].上海护理,2022,22(12):
结直肠癌造口患者疾病感知与生活质量的纵向研究
Illness perception and quality of life in colorectal cancer patients with enterostomy: a longitudinal study
DOI:
中文关键词:  结直肠癌  肠造口  疾病感知  生活质量  纵向研究
英文关键词:Colorectal cancer  Enterostomy  Illness perception  Quality of life  Longitudinal study
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作者单位E-mail
林鸿缘 福建医科大学护理学院 634400674@qq.com 
陈璟 中国人民解放军联勤保障部队第九〇〇医院护理部  
廖晓琴 福建医科大学附属协和医院护理部  
刘颖洁 中国人民解放军联勤保障部队第九〇〇医院普通外科  
林美娇 中国人民解放军联勤保障部队第九〇〇医院普通外科  
彭山玲* 中国人民解放军联勤保障部队第九〇〇医院护理部 psl30@163.com 
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中文摘要:
      目的 描述结直肠癌预防性肠造口患者不同阶段疾病感知和生活质量的动态变化,并探讨其相关性。方法 采用便利抽样法,于2020年11月至2021年12月选取福建某三级甲等医院符合纳入标准的116例结直肠癌预防性肠造口患者作为调查对象,使用一般资料调查表、简易版疾病感知问卷、造口患者生活质量量表对其进行问卷调查。结果 患者住院时、术后1个月、术后3个月的疾病感知总分分别为(57.90±5.10)分、(50.78±5.00)分、(44.07±5.61)分,呈逐渐下降趋势(p<0.001),且均处于中等偏上水平;生活质量总分分别为(2.74±0.66)分、(3.94±0.61)分、(5.09±0.76)分,呈逐渐上升趋势(p<0.001)。Pearson相关分析显示,疾病感知总分与生活质量总分在住院时、术后1个月、术后3个月呈负相关(r=-0.735,p<0.001;r=-0.846,p<0.001;r=-0.923,p<0.001)。结论 结直肠癌预防性肠造口患者疾病感知与生活质量在疾病不同阶段呈动态变化。患者负性疾病感知越少,生活质量越好。医务人员应科学评估不同阶段患者疾病感知水平,有针对性的对其进行护理干预,以提高患者生活质量。
英文摘要:
      Objective To describe the dynamic changes in illness perception and quality of life,and to explore their correlation in colorectal cancer patients with prophylactic enterostomy at different stages. Methods A total of 129 patients with colorectal cancer undergoing prophylactic enterostomy were selected as the research objects by convenient sampling who were meet the inclusion criteria in a tertiary first-class hospital in Fujian and institute from November 2020 to December 2021. General data questionnaire, the Brief Illness Perception Questionnaire,and the City of Hope Quality of Life-Ostomy Questionnaire were used to investigate them. Results The scores of illness perception were above the middle level at hospitalization,one month and three months after discharge,which were(57.90±5.10),(50.78±5.00),(44.07±5.61)and showed a gradually downward trend(p<0.001). The scores of quality of life were(2.74±0.66),(3.94±0.61),(5.09±0.76) and in a gradually increase tendency(p<0.001). Analysis of partial correlation showed that,there was a moderately to a highly negative correlation between the total score of illness perception and the total score of quality of life at hospitalization,one month and three months after discharge(r=-0.735,p<0.001;r=-0.846,p<0.001;r=-0.923,p<0.001). Conclusions The illness perception and quality of life in colorectal cancer with prophylactic enterostomy show dynamic changes. The less negative perception of patients,the better of quality of life. The medical staff needs to scientifically evaluate the illness perception at various time points, carry out targeted nursing interventions in an attempt to improve the quality of life of patients.
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