马梦琪,肖虹,吕毅,李健芝.慢性心力衰竭患者治疗负担体验的质性研究[J].上海护理,2023,23(11):
慢性心力衰竭患者治疗负担体验的质性研究
Experience of Treatment Burden in Patients With Chronic Heart Failure:A Qualitative Study
DOI:
中文关键词:  心力衰竭  治疗负担  累计复杂模型  体验  质性研究
英文关键词:Heart failure  Treatment of burden  The cumulative complexity model  Experience  Qualitative study
基金项目:2023年湖南省研究生创新项目课题
作者单位E-mail
马梦琪 南华大学 182021445@qq.com 
肖虹 襄阳市中心医院  
吕毅 南华大学附属第一医院  
李健芝* 南华大学衡阳医学院护理学院 441803026@qq.com 
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中文摘要:
      目的 深入了解慢性心力衰竭患者治疗负担的真实体验,旨在为该类患者制定减轻治疗负担的干预方案提供依据。方法 采用现象学研究方法,通过目的抽样法选取2022年8~10月就诊于衡阳市某三甲医院的15例慢性心力衰竭患者作为研究对象进行面对面半结构式深入访谈;采用Colaizzi 7步分析法对资料进行分析并提炼主题。结果 共提炼出5个主题9个亚主题:经济负担、获得医疗资源负担(对基层医疗缺乏信任、对治疗计划的制定不了解、 就复诊过程中检查流程的复杂性);自我行为管理负担(监测病情、改变原有的生活方式);服药负担(药物副作用、服药种类和频率);负性心理体验(自我价值感降低、疾病无法治愈的绝望感)。结论 慢性心力衰竭患者有着不同程度的治疗负担,医护人员应及时准确评估,制定个体化方案,尽可能将患者治疗负担降到最低,提高患者生命质量。
英文摘要:
      Objective To understand the real experience of treatment in patients with heart failure, providing a basis for the formulation of relevant intervention strategies.Methods Design an interview outline based on a cumulative complexity model,Semi-structured face to face interview were conducted among 15 heart failure patients using phenomenological method,themes were extracted by using Colaizzi’s 7-steps analytical method.Results There are 5 themes and 9 sub-themes: burden of accessing to medical resources:economic burden, burden of access to medical resources (Lack of trust in primary care、Lack of understanding of treatment plan development、Complexity of the examination process during follow-up consultations); self-behavioural management burden (monitoring of illness, lifestyle changes); medication burden (drug side effects, type and frequency of medication); Negative psychological experiences (reduced sense of self-worth, hopelessness for an incurable illness).Conclusion Patients with heart failure have heavy treatment burden in the process of disease treatment and management, and medical staff need timely and longitudinal evaluation, formulate individualized plans, rationally use medical resources, minimize the treatment burden of patients with chronic heart failure as much as possible, and improve the quality of life of patients.
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