龚娉,窦英茹,黄铭,戴雪梅.一例Ⅳ Rett综合征患者的护理体会[J].上海护理,2023,23(9):
一例Ⅳ Rett综合征患者的护理体会
Caring of a patient with IV Rett syndrome
投稿时间:2023-02-05  修订日期:2023-06-27
DOI:
中文关键词:  【关键词】Rett综合征  压力性损伤  重症护理
英文关键词:【Keywords】 Rett syndrome  Pressure Ulcer  Intensive Nursing
基金项目:江苏省人兽共患病学重点实验室 “护馨基金”项目 HX2201
作者单位E-mail
龚娉 扬州大学护理学院宜兴市第二人民医院 532200473@qq.com 
窦英茹* 江苏省苏北人民医院,公共卫生管理科 dyrhwyz@163.com 
黄铭 江苏省扬州市扬州大学护理学院·
公共卫生学院,邮编:225000 
 
戴雪梅 江苏省宜兴市第二人民医院重症医学科  
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中文摘要:
      【摘要】 总结1例Rett综合征Ⅳ期患者的护理经验。 其护理需结合患者的病情及特异性进行综合评估,针对其皮肤、饮食、运动方面与儿科、中医康复科、营养科进行多学科合作,针对该病探索出SEEDN护理模式。2周后患者情况好转,家属要求出院。
英文摘要:
      [Abstract] Aim To summarize a hospital's nursing experience with Rett syndrome stage IV.Introduction Based on the International Council of Nurses Health Objectives,for its skin、diet、and exercise aspects, it requires a comprehensive assessment of the patient's condition and specificity, as well as multidisciplinary collaboration with pediatrics.Methors Chinese medicine rehabilitation, nutrition, and a SEEDN care model was explored for this disease.Conclusion After two weeks, the patient improved and the family requested discharge.This care experience deepen the impact of caring for this disease.
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