| 朱迪,陈雁,徐任菊,赵志玲,陈秋菊,聂晓寒.基于综合转变模型的成人初显期强直性脊柱炎患者自我管理体验的质性研究[J].上海护理,2023,23(12): |
| 基于综合转变模型的成人初显期强直性脊柱炎患者自我管理体验的质性研究 |
| The self-management experience in emerging adulthoods with ankylosing spondylitis:A qualitative study |
| 投稿时间：2023-03-18 修订日期：2023-09-07 |
| DOI： |
| 中文关键词: 强直性脊柱炎 成人初显期 自我管理 障碍因素 质性研究 |
| 英文关键词:ankylosing spondylitis Emerging adulthood self-management qualitative research nursing |
| 基金项目:江苏省卫生健康委医学科研项目(CZHB216-2020)；南京鼓楼医院护理科研重点项目(ZSB720-3)； |
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| 中文摘要: |
| 目的 探讨成人初显期强直性脊柱炎患者的自我管理的阻碍因素，为后期构建成人初显期强直性脊柱炎患者自我管理模式提供参考依据。方法 基于综合转变模型设计访谈提纲，采用描述性现象学研究方法，对14例成人初显期强直性脊柱炎患者进行面对面半结构式深度访谈，运用Colaizzi 7步法对访谈资料进行分析。结果 成人初显期强直性脊柱炎患者自我管理行为障碍共提炼3大主题，7个亚主题。意识阶段障碍因素：自我管理意愿、自我管理知识与技能、自我管理行为益处与后果感知；动机阶段障碍因素：健康管理信念、自我管理信息支持；行动阶段障碍因素：自我管理行为依从性、自我效能、家属与医护人员的支持和监督。结论 医护人员应强化患者自我管理意识，提升疾病风险感知水平；拓展专业信息支持途径，帮助患者树立正确健康管理信念；同时充分调动社会支持系统，积极探索适合我国国情的成人初显期AS患者疾病管理模式。 |
| 英文摘要: |
| Objective Based on the framework of the integrated change model, the self-management experience of adult patients with emerging ankylosing spondylitis was deeply understood, so as to provide reference for the construction of self-management model.Methods Based on the integrated change model, the interview outline was designed, and the descriptive phenomenological research method was adopted to conduct face-to-face semi-structured in-depth interviews with 14 adult patients with emerging ankylosing spondylitis. The interview data were analyzed using the Colaizzi 7-step method. Results Self-management behavior disorders in adults with emerging ankylosing spondylitis were classified into 3 themes and 7 subthemes. Obstacle factors in consciousness stage: self-management willingness, self-management knowledge and skills, self-management behavior benefits and consequences perception; Motivation stage obstacle factors: health management belief, self-management information support; Obstacle factors in action stage: self-management behavior compliance, self-efficacy, support and supervision from family members and medical staff.Conclusion Medical staff should strengthen patients' self-management awareness and improve disease risk perception. Expand professional information support channels to help patients establish correct health management beliefs; At the same time, fully mobilizing the social support system, and actively exploring the disease management mode of adult patients with emerging AS suitable for our country. |
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