| 黄楚贤,施忠英,刘玥.青少年神经性厌食症患者父母照护体验的质性研究[J].上海护理,2024,24(1): |
| 青少年神经性厌食症患者父母照护体验的质性研究 |
| Parental Care Experience of Adolescents with Anorexia Nervosa：A Qualitative Study |
| 投稿时间：2023-04-13 修订日期：2024-01-10 |
| DOI： |
| 中文关键词: 神经性厌食症 青少年 照护体验 质性研究 |
| 英文关键词:anorexia nervosa adolescents care experience qualitative research |
| 基金项目:上海交通大学医学院护理科研重中之重项目(Jyhz2307)；上海现代护理职业教育集团特聘兼职教师资助计划(hlzjtpgr202316) |
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| 中文摘要: |
| 摘要：目的 深入了解青少年神经性厌食症患者父母在照护过程中的体验，为制定针对性的干预措施提供参考。方法 采用目的抽样法，选取14名青少年神经性厌食症患者的父母进行半结构式访谈，运用Colaizzi七步分析法提炼主题。结果 最终提炼出4个主题：负性体验（对疾病缺乏认知、患者低体重带来的冲击与内疚、食物背后的病态亲子关系、病耻感体验、对疾病预后的担忧）；照护负担（进餐方式及习惯改变、经济负担加重）；正性体验（支持与被支持、照护信念增强、个人成长与蜕变、对正常饮食和生活的向往）；渴望全方位的支持（对照护知识的渴求、渴望社会对疾病的关注）。结论 医护人员应重视疾病照护知识、技能及亲子互动模式等多方面的指导和支持，同时联合积极心理干预，最终减轻青少年神经性厌食症父母的负性体验，促进患者更好的康复。 |
| 英文摘要: |
| Abstract：Objective To deeply understand the experience of parents of adolescents with anorexia nervosa in the care process, and provide reference for the development of targeted intervention measures. Methods Using the objective sampling method, 14 parents of adolescents with anorexia nervosa were selected for semi-structured interviews, and the themes were extracted using the Colaizzi seven-step analysis method. Results Finally, 4 themes were extracted: negative experience (lack of awareness of disease, the impact and guilt brought by the patients' low body weight, the morbid parent-child relationship behind food, stigma experience, and worry about the prognosis of the disease); care burden (changes in eating patterns and habits, increased financial burden); positive experiences (support and being supported, care belief enhancement, personal growth and transformation, desire for normal eating and life); desire for comprehensive support (thirst for care knowledge, desire for knowledge of care, desire for social attention to disease). Conclusion Medical staff should pay attention to the guidance and support of disease care knowledge, skills, and parent-child interaction mode, and combine with positive psychological intervention to ultimately reduce the negative experience of parents of adolescents with anorexia nervosa and promote better recovery of patients. |
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