| 孔珍其,杜佳翼,朱丽婵,汪春雨.1例脑胶质瘤儿童安宁疗护家庭医疗决策冲突的多维度干预[J].上海护理,2026,26(5): |
| 1例脑胶质瘤儿童安宁疗护家庭医疗决策冲突的多维度干预 |
| Multidimensional intervention for family medical decision-making conflict in palliative care for a child with brain glioma |
| 投稿时间：2025-08-25 修订日期：2026-04-29 |
| DOI： |
| 中文关键词: 儿童安宁疗护 决策冲突 多维度干预 整合照护 家庭决策 |
| 英文关键词:Children"s palliative care Decision conflicts Multidimensional intervention Integrated care family decision making |
| 基金项目:雏菊学苑儿童安宁缓和医疗科研项目，DA-YB-202506 |
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| 中文摘要: |
| 目的:总结1例弥漫性内生型脑桥胶质瘤晚期患儿安宁疗护中多维度干预模式在家庭决策冲突管理中的护理实践经验。方法:采用多学科团队协作、多元化决策工具及多维度综合干预策略,动态评估并化解治疗选择与情感需求引发的决策冲突。结果:经过多维度干预后,家庭决策冲突得到缓解,患儿完成姑息性放疗30次,症状控制有效,患儿情感需求通过社交重塑、病房生日会等得以满足,生活质量显著改善。结论:多维度干预模式通过整合医疗决策支持、心理调适及社会资源协同,有效缓解家庭决策冲突,为儿童安宁疗护决策实践提供了参考依据。 |
| 英文摘要: |
| Objective: To summarize the nursing practice experience of multi-dimensional intervention mode in the management of family decision conflict in the hospice care of a child with diffuse endogenous pontine glioma in advanced stage. Methods: Multidisciplinary team collaboration, diversified decision-making tools and multi-dimensional comprehensive intervention strategies were used to dynamically evaluate and resolve the decision-making conflict caused by treatment choice and emotional needs. Results: After multidimensional intervention, family decision-making conflicts were alleviated. The child completed 30 palliative radiotherapy, with effective symptom control. The child"s emotional needs were met through social reshaping, ward birthday parties, etc., leading to a significant improvement in quality of life. Conclusion: The multi-dimensional intervention model can effectively alleviate the conflict of family decision-making by integrating medical decision support, psychological adjustment and social resources coordination, and provide a reference for the practice of children"s palliative care decision-making. |
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