基于健康生态学模型的脑卒中偏瘫患者失志影响因素的质性研究
A qualitative study on the influencing factors of demoralization in stroke patients with hemiplegia based on the Health Ecology Model
投稿时间:2026-04-22  修订日期:2026-06-07
DOI:
中文关键词:  健康生态学模型  脑卒中  偏瘫  失志  影响因素  质性研究  干预策略
英文关键词:Health Ecology Model  Stroke  Hemiplegia  Demoralization  Influencing Factors  Qualitative Study  Intervention Strategies
基金项目:贵州中医药大学研究生科研基金:基于Kano模型的脑卒中照顾者需求导向型照顾负担干预方案的构建 【HL202517】
作者单位邮编
田楠 贵州中医药大学 550025
严璐* 贵州中医药大学 550025
刘永香 贵州中医药大学 550025
罗世芬 贵州中医药大学 550025
程联凤 贵州中医药大学 550025
杨茂雪 贵州中医药大学 550025
周美蓉 贵州中医药大学 550025
刘云 贵州中医药大学 550025
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中文摘要:
      目的 基于健康生态学模型,从脑卒中偏瘫患者主观体验出发,剖析其失志的影响因素,为制定多层次干预策略提供依据。方法 采用目的抽样法,选取2025年12月至2026年2月贵阳市某三级甲等医院针灸康复科符合失志评定标准的14例脑卒中偏瘫患者,开展半结构式深度访谈,以资料饱和为访谈终止标准,运用Colaizzi 7步法分析资料并提炼主题。结果 共提炼出5个主题、15个亚主题:个体特质层面(身体自主权的丧失、多病共存与身体机能老化、睡眠与身体节律的紊乱);行为心理层面(对康复的灾难化想象、习得性无助感的形成、消极回避为主的应对方式);人际网络层面(对家庭成员的愧疚与罪恶感、家庭角色的冲突、病耻感致社交回避、支持性情感需求未充分满足);生活环境层面(无障碍环境的缺失、康复资源可及性不足、经济压力的重负);政策环境层面(政策信息壁垒、政策保障受限)。结论 脑卒中偏瘫患者失志受多层次因素交互影响,医护人员应从身心调节、心理重塑、家庭社会支持、政策保障与支持等多角度形成综合干预策略,以减轻患者失志水平,提升其生活质量。
英文摘要:
      Objective Based on the Health Ecology Model, this study aims to analyze the influencing factors of demoralization from the subjective experience of stroke patients with hemiplegia, so as to provide a basis for developing multi-level intervention strategies. Methods Purposive sampling was used to select 14 stroke patients with hemiplegia who met the demoralization assessment criteria from the Acupuncture and Rehabilitation Department of a tertiary first-class hospital in Guiyang from December 2025 to February 2026. Semi-structured in-depth interviews were conducted, with data saturation as the termination criterion. The Colaizzi’s seven-step method was applied to analyze the data and extract themes. Results A total of 5 themes and 15 sub-themes were extracted: individual trait level (loss of physical autonomy, multimorbidity and physical aging, disruption of sleep and body rhythm); behavioral and psychological level (catastrophic imagination of rehabilitation, formation of learned helplessness, mainly negative avoidance coping style); interpersonal network level (guilt and sin towards family members, conflict of family roles, social avoidance due to stigma, unmet supportive emotional needs); living environment level (lack of barrier-free environments, insufficient accessibility of rehabilitation resources, heavy economic pressure); policy environment level (policy information barriers, limited policy protection). Conclusion Demoralization in stroke patients with hemiplegia is influenced by multi-level interacting factors. Medical staff should develop comprehensive intervention strategies from multiple perspectives including physical and mental regulation, psychological reshaping, family and social support, and policy guarantee and support, so as to reduce the level of demoralization and improve the quality of life of patients.
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